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Twenty-seven states and DC sue 23andMe to oppose the sale of DNA data from its customers without their direct consent

⁨869⁩ ⁨likes⁩

Submitted ⁨⁨1⁩ ⁨day⁩ ago⁩ by ⁨Pro@programming.dev⁩ to ⁨technology@lemmy.world⁩

https://ag.ny.gov/press-release/2025/attorney-general-james-sues-23andme-protect-new-yorkers-genetic-data

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Comments

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  • toiletobserver@lemmy.world ⁨1⁩ ⁨day⁩ ago

    I’m totally shocked that a corporation would do something as scummy and predictable as this. Shocked I tell you!

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    • 52fighters@lemmy.sdf.org ⁨1⁩ ⁨day⁩ ago

      The sale is the entire company and assets to Regeneron Pharmaceuticals.

      NPR reported in this issue:

      Regeneron Pharmaceuticals said last month it aimed to buy the company for $256 million. Regeneron said it would comply with 23andMe’s privacy policies and applicable law. It said it would process all customer personal data in accordance with the consents, privacy policies and statements, terms of service, and notices currently in effect and have security controls in place designed to protect such data.

      I don’t know much about Regeneron Pharmaceuticals but previously I read from others here that they represent the best case scenario.

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      • seat6@lemmy.zip ⁨1⁩ ⁨day⁩ ago

        Yeah; I think it’s the best case scenario that at least the data will be used to develop new drugs.

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  • SanicHegehog@lemm.ee ⁨1⁩ ⁨day⁩ ago

    I’m so glad I never got around to doing one of these tests

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    • trk@aussie.zone ⁨1⁩ ⁨day⁩ ago

      One of my family members moved to the US and did it. Really pissed me off that they’d do that but I guess it’s the thing to do there?? They’ve since moved back to AU but got to leave a little bit of themselves (and by genetics, me) behind to be sold to the highest bidder <3

      Thanks heaps for that.

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      • SpaceNoodle@lemmy.world ⁨1⁩ ⁨day⁩ ago

        It’s … not “the thing to do” here.

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  • Pnut@lemm.ee ⁨1⁩ ⁨day⁩ ago

    I tried explaining this to my family. The legal documents you have to agree to should be a huge red flag when all you get is “you are caucasian”.

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    • trk@aussie.zone ⁨1⁩ ⁨day⁩ ago

      Yeah but I might be .05% native american and then I can get a cool eagle tattoo

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      • kautau@lemmy.world ⁨1⁩ ⁨day⁩ ago

        “My name is no longer Brayden, it’s Tanec Iak, meaning ‘he who mines redstone’”

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      • mic_check_one_two@lemmy.dbzer0.com ⁨1⁩ ⁨day⁩ ago

        “Aww shit that means my great great great grandpappy raped some native girl. Better tell every native person I know about it!”

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    • baltakatei@sopuli.xyz ⁨1⁩ ⁨day⁩ ago

      I was familiar with how their single nucleotide polymorphism fingerprinting worked in principle when I submitted my sample. So, I was not surprised when my report indicated majority Native American (both my parents were born in the Navajo Nation).

      As for preventing misuse of the genetic profile 23andMe built, the primary legal protection is the Genetic Information Nondiscrimination Act of 2008 (GINA) which prohibits insurance providers and employers from discriminating against patients and employees based upon disorders that are correlated with their genetic information.

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      • Poem_for_your_sprog@lemmy.world ⁨1⁩ ⁨day⁩ ago

        Gina

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  • ray@sh.itjust.works ⁨1⁩ ⁨day⁩ ago

    27andDC vs 23andMe

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    • ramble81@lemmy.zip ⁨1⁩ ⁨day⁩ ago

      25or6toFour

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  • fluxion@lemmy.world ⁨1⁩ ⁨day⁩ ago

    The amount of damage and criminality this exposes people to is insane

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  • TrueStoryBob@lemmy.world ⁨1⁩ ⁨day⁩ ago

    I was so tempted to try their service, but it was always in the back of my mind, inside the part of my brain that was conscious during marketing 101 class in college: “What’s the long term business model here? What happens after they have everyone’s genetic identity?” Then it dawned on me like ooooohhhhh that’s the plan… no thanks.

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  • Jimmycakes@lemmy.world ⁨1⁩ ⁨day⁩ ago

    They gonna be like “oops we got hacked and now those guys have the data anyway”

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    • phdepressed@sh.itjust.works ⁨1⁩ ⁨day⁩ ago

      They have previously been hacked.

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  • nutsack@lemmy.dbzer0.com ⁨8⁩ ⁨hours⁩ ago

    oh no my call options (i don’t actually have call options)

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  • misteloct@lemmy.dbzer0.com ⁨16⁩ ⁨hours⁩ ago

    Can whoever posted for everyone to delete their 23andme reply here with an “I told you so?”. We owe you that much for alerting us. I saw it a few months ago and did so, thanks!

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  • Lumisal@lemmy.world ⁨1⁩ ⁨day⁩ ago

    That there’s this just opposition must mean quite a decent chunk of politicians and wealthier people may have used this service.

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  • untakenusername@sh.itjust.works ⁨19⁩ ⁨hours⁩ ago

    at least it’s gunna be used for drug development now

    imagine if palentir bought this stuff

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  • BeMoreCareful@lemmy.world ⁨1⁩ ⁨day⁩ ago

    Idk if it was just a conspiracy theory, but I thought a lot of these DNA testing websites were funded by the Mormon church.

    I feel like they have bags of cash.

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    • Lumisal@lemmy.world ⁨1⁩ ⁨day⁩ ago

      I think it’s just ancestry

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