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What happens to your data if 23andMe collapses?

⁨258⁩ ⁨likes⁩

Submitted ⁨⁨1⁩ ⁨month⁩ ago⁩ by ⁨Tea@programming.dev⁩ to ⁨technology@lemmy.world⁩

https://news.harvard.edu/gazette/story/2025/03/what-happens-to-your-genetic-data-if-23andme-collapses/

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Comments

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  • db2@lemmy.world ⁨1⁩ ⁨month⁩ ago

    It isn’t yours, if you use them you signed it all over to them. They patented your DNA.

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    • ShittyBeatlesFCPres@lemmy.world ⁨1⁩ ⁨month⁩ ago

      I’m hoping in 500 years, my DNA sequence is found on a perfectly preserved micro SD card and my clone gets to meet President Camacho and take on Beef Supreme and the Dildozer on Monday Night Rehabilitation.

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      • Alphane_Moon@lemmy.world ⁨1⁩ ⁨month⁩ ago

        That’s the optimistic timeline, we still have to actually get there first.

        I am sure you can come with what a pessimistic timeline would look like.

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    • sugar_in_your_tea@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

      They patented your DNA.

      You can’t patent DNA… They can sell it though, with a simple TOS update (if they even need to).

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      • db2@lemmy.world ⁨1⁩ ⁨month⁩ ago

        geneticspolicy.nccrcg.org/…/gene-patents/

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    • Flagstaff@programming.dev ⁨1⁩ ⁨month⁩ ago

      The monsters.

      Well, that originally autocorrected to “mobsters,” but I suppose that’d work in a certain context, too.

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    • deranger@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

      That’s not true in the slightest.

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  • the_crotch@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

    Shit, they’re gonna want my DNA. I’m 1/8th Cherokee and I’m descended from Napoleon, Julius Caesar, Christopher Columbus, Abraham Lincoln, every signatory of the magna carta, Jesus, and the Mayflower. The actual ship. Don’t ask.

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    • otacon239@lemmy.world ⁨1⁩ ⁨month⁩ ago

      I’m pretty sure you’re main character in an Assassin’s Creed game.

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      • WuceBrillis@lemm.ee ⁨1⁩ ⁨month⁩ ago

        You can’t just go around accusing people of being mass murderers.

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  • SplashJackson@lemmy.ca ⁨1⁩ ⁨month⁩ ago

    I believe you and your genome become property of whomever buys the data and you’ll have to go over to their house and rake their leaves for them and stuff

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  • roofuskit@lemmy.world ⁨1⁩ ⁨month⁩ ago

    This eventually.

    youtu.be/NIIZ2P-fiyI

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    • ininewcrow@lemmy.ca ⁨1⁩ ⁨month⁩ ago

      That is a great film that I should watch again … and so should everyone

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      • sugar_in_your_tea@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

        Absolutely agree. This is one of my favorites.

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      • roofuskit@lemmy.world ⁨1⁩ ⁨month⁩ ago

        One of my all time favorites.

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  • aleq@lemmy.world ⁨1⁩ ⁨month⁩ ago

    There’s a non-zero % chance that a nazi with ties to the government and unlimited money might be interested in this data… 👀

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  • HK65@sopuli.xyz ⁨1⁩ ⁨month⁩ ago

    You guys know that you share half your genome with your kids and parents, so it’s not even just the users’ data, but also people who might not even know about this.

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  • slickgoat@lemmy.world ⁨1⁩ ⁨month⁩ ago

    I did this over a year ago, requesting that they delete my shit.

    I got a nice email back saying that they would do so, but would retain necessary material to comply with local laws and law enforcement obligations.

    So, my best bet is they didn’t delete anything. I only hope is that they don’t put it on the open market.

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  • nihilist_hippie@lemmy.ca ⁨1⁩ ⁨month⁩ ago

    I never did a DNA test but both my parents did… How screwed am I?

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    • vk6flab@lemmy.radio ⁨1⁩ ⁨month⁩ ago

      If both your parents did a DNA test with the same company, and you are their child and not the result of a liaison with the milkman, you are 100% screwed.

      If you are the product of a liaison with the milkman and the milkman didn’t do a DNA test with the same company, you’re 50% screwed.

      If you were adopted, then there will be no impact from the DNA test, but if your parents didn’t tell you, they’re 100% screwed. (Assuming that your birth parents didn’t have a DNA test.)

      In other words, there’s a non-zero chance that you’re screwed.

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    • Gregorech@lemmy.world ⁨1⁩ ⁨month⁩ ago

      You should be fine, unless you’re planning on a life of crime.

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      • sugar_in_your_tea@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

        Or if you’re a minority who could be framed for a crime.

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      • midribbon_action@lemmy.blahaj.zone ⁨1⁩ ⁨month⁩ ago

        You should be fine to not have a phone PIN, unless you’re planning on a life of crime.

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  • biofaust@lemmy.world ⁨1⁩ ⁨month⁩ ago

    I just passed by the settings page and requested all my data. When I receive it, I will delete the account which, according to their full privacy statement, requires them to discard my sample, delete my data AND opt me out of 23andMe Research.

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  • oakey66@lemmy.world ⁨1⁩ ⁨month⁩ ago

    After the Ashkenazi data leak, I deleted my data with them. Never sharing that again.

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    • AlligatorBlizzard@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

      My mom is Jewish and I’d been considering doing one of those DNA tests until that data leak happened, I was glad I hadn’t done it.

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  • ipkpjersi@lemmy.ml ⁨1⁩ ⁨month⁩ ago

    Same thing that happens with NCIX’s personal information data, it probably goes to the highest bidder.

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    • AnUnusualRelic@lemmy.world ⁨1⁩ ⁨month⁩ ago

      Isn’t that what already happened to it before?

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      • ipkpjersi@lemmy.ml ⁨1⁩ ⁨month⁩ ago

        Yes, correct, I made a typo. I fixed it now.

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  • howlingecko@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

    www.404media.co/dna-of-15-million-people-for-sale…

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  • Horsey@lemmy.world ⁨1⁩ ⁨month⁩ ago

    you should definitely request your data to be deleted before it’s too late

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  • GrumpyDuckling@sh.itjust.works ⁨1⁩ ⁨month⁩ ago

    When the ACA gets repealed insurance comoanies can use it to preemptively deny you coverage. Then there’s the ethnic cleansing of course. There will be religious people who will use it for marriage licenses or breeding permits.

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  • thisphuckinguy@lemmy.world ⁨1⁩ ⁨month⁩ ago

    Never did the stupid test.

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  • homesweethomeMrL@lemmy.world ⁨1⁩ ⁨month⁩ ago

    russian psyops gets quasi-dimensional

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