sunbrrnslapper
@sunbrrnslapper@lemmy.world
- Comment on They say your body is the only instrument that doesn't require any lessons 1 month ago:
Why?!?
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
Probably would be - age plays into it as well. My kids are pretty impacted - minimal language, safety issues, etc. I suspect it can vary widely.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
My kids don’t have full language capabilities, they struggle with fixations (which means learning has to be customized to their fixations or it won’t happen), and they don’t have enough situational awareness to be safe.
So, therapies are helpful in getting them enough language to have basic needs met (and minimize behavior issues), practicing doing things they don’t prefer for short bursts and learning things like how to behave in a parking lot. We may never get to productivity or self sufficiency - we are focused on staying alive.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
Thanks for saying that. 🙂
I would tear off my right arm to have a robust enough safety net to take care of my kids adequately (and thanks to UHC in that situation, I would live thru it!). The cost is so high, and there is such a fear of people abusing the system, I struggle to see how it would practically work out - and worry that my kids would be able to navigate complex government programs after I’m gone. I’d vote for UHC every time and willing pay into the program - but I am resigned to knowing it won’t improve my kids’ lives.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
Nothing, back of the napkin math for discussion purposes based on the 2 diagnosisea and doc recommendations we’ve gotten. Totally can adjust if you have a more accurate number.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
So, you totally hit the nail on the head. I couldn’t agree more: It is about maximizing resources for overall good. It is just that some groups may not see a qualitative difference in care.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
Fair, take that piece out of the equation. Our docs still advised us on 20+ hours of therapy, all of which is costly.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
20+ hours of anything is costly if you are paying the therapists appropriately. The issue is that their work is 1:1 and doesn’t scale easily.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
You are right, which is why I used 15%, instead of 82%.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
No, it is from unfortunate personal experience. Special needs families get the short end of the stick in a lot of ways - ours included. Feel free to IM me about it if you want specific anecdotes. After killing myself to get my kids what they need (navigating insurance denials, waiting lists for specialists, underfunded and confusing government programs, lack of childcare, hitting out of pocket maximums year after year, and taking jobs that leave me exhausted and with little family time to pay for it all), I have a huge defense mechanism for anything that sounds like it can quickly and easily solve this kind of situation - because I’ve been repeatedly shown it is a pipe dream. It doesn’t mean UHC isn’t a noble cause or the right way to go. But the reality is that it probably won’t be much of a qualitative change for families like ours. And it is hard to hear that our experiences are not valid.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
I just estimated that 15% need care. So that would leave a huge number that don’t - you are right.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
My kids are real life examples demonstrating that huge investment, while good for the individuals, does not reduce the cost or burden of them to society later in their life. And that very concept could risk society’s willingness to pay for any disabled person’s full care under universal healthcare.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
Man, I wish the hundreds of thousands of dollars of care we got positioned my kids into the workforce. Our reality is that all that while the care did help and make their lives much better - it won’t translate into productivity or self sufficiency. 🙁 I am super worried that will practically mean a universal healthcare system in the US limits disability care because it isn’t deemed as having a good enough ROI.
- Comment on If everyone had access to healthcare the net benefit of treating the mental illness and other disabilities holding them back would easily cover the cost of the healthcare itself. 1 month ago:
I don’t know because I’m in the US, but does universal healthcare in other countries cover autism-related therapies and care such as ABA, occupational and speech at the rates recommend by docs (our docs recommended 20+ hours/week - or roughly the cost of $100k/year)? And is that factored into the equation?
I haven’t seen the official modeling, just assumptions around the internet. But back of the napkin math suggests that appropriate autism care alone could be quite high: 1/36 of the 341,500,000 American residents have autism. Assuming 15% need care in the range of $100k, would be somewhere around $138b/year for just autism care. Does that seem in line with what you are thinking? Either way, are you able to point me to some of the modeling you have found? I’d love to learn more about how it tactically works.
- Comment on Boeing is changing their brand name 2 months ago:
A true Seattlite calls them “Boeings.” The s at the end makes you sound smarter. 😉
- Comment on What's your favourite colour? [Non-political version] 3 months ago:
Hot pink because it is girly, yet aggressive.
- Comment on Walking in a bouncy house be like 3 months ago:
Indeed!
- Comment on My pick is Rubberband Man by the Spinners. 4 months ago:
Rebel Girl by Bikini Kill.
- Comment on Recycling 4-year-old 737 memes (Part 1) 5 months ago:
I think tossing one of their execs and jail would inspire some changes.
- Comment on Email Etiquette 6 months ago:
Also 19k+ unread mail. Yikes!
- Comment on Saves time and money 6 months ago:
Not just practical - it also tastes great.
- Comment on Google "Work"space 6 months ago:
Excel has never once shot slicers over the spreadsheet (something I have had happen on several occasions in Google Sheets). And it has issues with formatting tables in Docs - basically it takes way longer to get something that looks half as good.
- Comment on Google "Work"space 6 months ago:
Shit, I totally missed that. This is for reals a Google Workspace ad that I only modified the text of. I wouldn’t have used this particular ad if I had seen that. Apologies for the miss!!
- Comment on Google "Work"space 6 months ago:
Oh, it is just a pretty terrible set of tools if you need to do anything that is semi professional (build a complex spreadsheet or a presentation you can show in public, for example).
- Submitted 6 months ago to [deleted] | 28 comments
- Comment on Safety First 8 months ago:
Not all heros wear capes.
- Comment on What's your hobby? 8 months ago:
IKR? Pesky ability to ward off dread diseases! 😉
- Comment on What's your hobby? 8 months ago:
OMG, my kids have this type of autism!
- Comment on stigma 10 months ago:
This is the kind of commentary I’m here for.