The people with access to their private data includes 23 and everyone else.
Attorney General Bonta Urgently Issues Consumer Alert for 23andMe Customers
Submitted 4 weeks ago by cantankerous_cashew@lemmy.world to technology@lemmy.world
Comments
HowAbt2morrow@futurology.today 4 weeks ago
7112@lemmy.world 4 weeks ago
Thank you for sharing.
adespoton@lemmy.ca 4 weeks ago
Who does ancestry.com get to run their sequencing? Because I have a number of relatives who did that. I don’t think it’s 23andme.
GamingChairModel@lemmy.world 4 weeks ago
Everyone gets to run sequencing, but this post is about 23andme nearing bankruptcy, where they would run an auction for their records, including this genetic information of its customers.
adespoton@lemmy.ca 4 weeks ago
Yeah; my point is: if 23andme is liquidating, other genetic labs likely aren’t too far behind, and I’d like some warning there too… especially since I have to convince other people to delete their data.
Shadow@lemmy.ca 4 weeks ago
Well I’m glad I downloaded all my genome data and deleted it a few months ago. It was easy to do, there’s no way excuse not to.
4am@lemm.ee 4 weeks ago
It’s cute you think that it’s actually deleted
Shadow@lemmy.ca 4 weeks ago
Yes, it’s not worth them fucking around with various pii / gdpr fines. As someone who has worked with pii, we always took deletion requests seriously.
swelter_spark@reddthat.com 4 weeks ago
I felt weird about it when my dad used this 23andMe service. He was very privacy-conscious, so it was uncharacteristic for him. Now he’s dead. I wonder if there’s still any way to get it deleted.
Shadow@lemmy.ca 4 weeks ago
kandoh@reddthat.com 4 weeks ago
You can do your own dna testing at home now anyways
phdepressed@sh.itjust.works 4 weeks ago
You still have to send it somewhere, at home kits are just about collecting the sample not sequencing it.
chonkyninja@lemmy.world 4 weeks ago
Now imagine, the person you responded to, is allowed to vote.
MDCCCLV@lemmy.ca 4 weeks ago
They didn’t say what they were testing for. You can do a binary do you have DNA or not test to see if you are in fact a robot or not. All you need is soap and alcohol.
grue@lemmy.world 4 weeks ago
This thread made me look into the idea of DIYing it, and one of the search results I found looks like legitimately is about actually doing the sequencing yourself:
techcrunch.com/…/citizen-scientists-you-can-now-d…
$800 in 2016 was steep enough, but at the $1600 it apparently costs today I’m not sure it’s still within the realm of DIY, if it ever really was. I wonder if there are any cheaper competitors?
atrielienz@lemmy.world 4 weeks ago
Several years back now, one of my colleagues was very much into the genealogy thing. She had major problems I think with needing to find herself or where she fit in or whatever. She was very much pushing me to try one of the DNA genealogy testing services and I had to be very firm about not wanting to participate in it.
This is why. My sense of self has never been in question and I don’t need to attribute who or what I am to some people I’ve never met or culture I haven’t participated in or been a part of. I have been considered “other” my whole life by in groups who only wanted me to identify with the bits and pieces of my culture or personality that they approved of and I pretty much had to get over that at a young age in order to not feel inadequate or content with myself.
As a result these always seemed like services that over promise and under deliver and they ask for way more privileged information than I am comfortable with giving away to anyone (I was skeptical when my doctor wanted me to participate in cancer screening via DNA testing because the only angle I could see for wanting it that would be profitable to an insurance firm was to deny me coverage later). Every time something hits the media about a leak or mismanagement of customer data, I am vindicated in my belief that it’s not worth the price of admission.
WhatSay@slrpnk.net 4 weeks ago
Whenever someone mentioned these services to me, I would respond that I didn’t trust them, and was often called paranoid. Maybe I just don’t trust large companies with my most private data, and I don’t know why others would.
Sixtyforce@sh.itjust.works 4 weeks ago
The usual retort I heard is because someone in your extended family probably did take a DNA test at some point they “practically already have yours.” At least that’s what redditors parroted all the time.
I don’t know if it is true, because I thought being a couple steps removed from your parents already renders most hereditary DNA unrelated. But I’m just a layman.
Regardless, it still wouldn’t have been my choice to deliberately self own like that. Just turns me into an unwilling victim instead, much better /s.
Ledericas@lemm.ee 4 weeks ago
not only that, but the test isnt going to be useful to a person whos not a geneticist anyways.
4am@lemm.ee 4 weeks ago
It doesn’t even matter anymore if you have participated or not. If any of your family members have, they can correlate the DNA they have with written genealogy records and basically determine your race, ancestry, defects, etc.
So when the Nazis in power really want to purge for purity, they already have whatever list they need.
atrielienz@lemmy.world 4 weeks ago
I don’t think giving them more information to use against you. Is a good thing. Think about it this way, even if the police have you on camera in an area where a crime is committed, that doesn’t mean you can’t still plead the fifth and request a lawyer (assuming you’re in the US). You aren’t required to further their investigation.
b3an@lemmy.world 4 weeks ago
I also don’t trust these. There is very little regulation and protection. Case in point.
Ledericas@lemm.ee 4 weeks ago
a layperson isnt going to find much use of inaccurate results of potential “genetic diseases” a geneticist will do that. so it