Comment on Drugmakers Are Set to Pay 23andMe Millions to Access Consumer DNA
partial_accumen@lemmy.world 1 year ago
The real dystopian horror is when these genetics companies start selling to insurance companies. Think about it:
“I’m sorry we aren’t covering this cancer claim with our health insurance product because you are genetically predisposed to it”
We need legislation now to prevent genetic discrimination.
“I’m sorry we aren’t covering this cancer claim with our health insurance product because you are genetically predisposed to it”
You almost got this right…
It’s more like, you’re mother submitted DNA and she’s predisposed, so YOU get denied. And that will go back a few generations.
And when it’s something like a 2nd cousin submits DNA and is predisposed, they won’t deny you specifically, but they’ll raise your rates without letting you know why.
For more information please refer to the documentary ‘Gattaca’
Society is really doing its darndest to turn all the dystopian cyberpunk worlds into reality huh
We need a lot of things.
Spoiler: We’re not getting them because too many politicians are bought and paid for.
We do have legislation to protect genetic information, what we need is to prevent the gathering and distribution of this information in the first place because those laws go away the second someone is positioned to make a shit ton of money from it.
in fact regulation IS the way to prevent this kind of discrimination, otherwise these companies can just start demanding genetic tests to rule out predisposition, regardless of the previous existence of a database with this data or their access to it.
I dunno. That’s all super expected.
To me the dystopian part is millions of people with no personality needing to send spit to a black box private company so they can get a letter back telling them how special they are.
Someone never saw Gattaca.
Laws against that have already been passed. No one’s allowed to do it.
The problem is, that the law is not absolute. Neither in it’s writing nor it’s application.
Large companies regularly break the law (especially data protection) and face very little consequences. Either because they can afford a staff of lawyers to find and build loopholes, or through schmoozing with the right desicion makers. Paying a fine of 20 million is not much when you made 20 billion (20 thousand million) in profit.
Even more so, very large companies (think Facebook or Google) hold enough political power to influence or even change laws.
Nothing you just doom and gloom said changes the simple fact (it is in writing) that it’s illegal.
You are correct. It is illegal.
Although I wonder if HIPAA would need to get involved in places like the US if that happens. If that data is used to diagnose, then it falls under HIPAA.
If they do that, there will definitely be giant legal battles. I wonder if that is a legal risk they’d want to take on.
HIPAA basically only covers healthcare providers and workers. I ran into this when the VA mailed my entire medical history to some random person. Since it wasn’t the healthcare branch of the VA, I had exactly zero recourse.
That’s not true. HIPAA covers anyone handling protected health information in a professional manner. If some office clerk at the VA is mailing out copies of HIPAA-protected information, they’re bound by HIPAA. If a consulting IT firm has access to a hospital’s servers as they’re changing something about the EHR, they’re bound by HIPAA. Protected information cannot make its way from a “covered entity” to a non-covered entity like a totally unrelated bakery who would not have an obligation to protect your information without either: 1) violating the law, 2) you personally disclosing the information to the non-protected party, or 3) you or someone authorized on your behalf signing a disclosure waiver permitting the covered entity to disclose
RobotToaster@mander.xyz 1 year ago
en.wikipedia.org/…/Genetic_Information_Nondiscrim…
partial_accumen@lemmy.world 1 year ago
I remember when this legislation was being drafted. I didn’t realize it had passed!
IMO its still too narrow. There’s nothing in the law I saw that prevents a landlord from using genetic information or car insurance, etc.
Furball@sh.itjust.works 1 year ago
What would a landlord do with your genetic information
reverendsteveii@lemm.ee 1 year ago
he’d feed it and a number of other factors into an opaque, completely unaccountable AI that makes rental decisions for him without disclosing the factors that went into the decision and with no appeals process.
Imagine if housing operated like reddit bans.
Fondots@lemmy.world 1 year ago
Off the top of my head
This tenant is predisposed to cancer (or other medical issues), which means an increased likelihood of them getting stuck with massive medical bills and financial hardship so they would have a harder time paying rent on time, better Jack up their rent so I can get my money’s worth out of them while I still can or just deny their application altogether
This tenant appears to be part black, Jewish, or some other ethnicity I don’t like, better find a reason to jack up their rent or kick them out
kingludd@lemmy.basedcount.com 1 year ago
More likely is a background/credit check service that runs statistical analysis on genetic factors that correlate with late payments or property damage as part of their renter screening service.