Massive Unarchivable Datasets of Research That is Supported by The National Institutes of Health, Could be Lost Forever Due to Restricted Access Bound by Strict Data Use Agreements.

I received news this morning that some NIH repositories now have a message: “This repository is under review for potential modification in compliance with Administration directives.” Many of these repositories have controlled access data (because of they involve human medical data – I probably don’t have to say it, but please don’t share restricted human medical data openly…), but some have open access/unrestricted data.