I mean people are surprised that autistic people dislike autism speaks
Comment on First human brain implant malfunctioned, Neuralink says
peopleproblems@lemmy.world 1 month agoMy aunt and uncle are Deaf and contentious is pretty accurate.
I get why cochlear implants are shunned, but I don’t get why it’s such a hot button to even consider. We give paraplegics wheelchairs y’know
orrk@lemmy.world 1 month ago
andros_rex@lemmy.world 1 month ago
Had a class with some ABA techs who gave a presentation about Autism Speaks for their final project - they had no idea that criticism of AS/their entire field existed.
orrk@lemmy.world 1 month ago
oh, ABA, you mean the “therapy” that for some reason causes a suicide rate of over 70%?
tho an “ABA tech” is cheaper than an actual medical professional since they just need a few weeks of training instead of several years
andros_rex@lemmy.world 1 month ago
It’s hard to get away with “your presentation and profession is shit and you didn’t bother looking into any information other than your first google search” as a peer unfortunately. I did manage some gentle questions about AS’s one autistic board member’s exit….
It is fascinating that “behavioral health” seems to be just torturing/drugging kids until they get better. I didn’t get ABA, but very similar treatment.
captainlezbian@lemmy.world 1 month ago
Because they kinda suck in a way wheelchairs don’t. Wheelchairs grant an alternative to ambulation. Cochlear implants give a new sense, one that those born without it literally don’t have the brain buildup to deal with. Like, look into those who got it and don’t use it. And often they’re forced on children by parents who will never learn sign language. I’m on board with children getting CIs as a teenager if a mental health professional with expertise in the deaf signs off that they weren’t unduly coerced, but it’s a major medical decision often forced or coerced on infants and young children by hearing parents and a hearing society to serve the interests of the hearing rather than the deaf child.
Fucking hell, hearing aids are uncomfortable. And not just because it’s something inside your ears. Like, it’s not the same as natural hearing (my loss is degenerative, I’ve had both). The sound filtration is worse and it overstimulates the brain. But hearing people get angry when you turn your ears off because you need a break because to many hearing people the point is to make you not deaf/hard of hearing. But the fact is we always are, it’s just that sometimes we’re using an assistive device that is often uncomfortable or outright painful.
Cochlear implants might be better seen as a lesbian having a platonic husband instead of a romantic wife. It’s uncomfortable assimilation and a worse solution in the absence of social pressure, and it gives the pressure ammunition. Absent the social pressures, it’s your choice. And to be upfront, I expect to get them once my hearing reaches the point they’re better than hearing aids. And also if I was a native signer they would have to earn a place in my skull and I’m angry that I’m not a native signer. As I implied, my hearing loss is genetic, and it fits pretty well to what your middle school taught you about a mono-allele dominant trait.
Wheelchairs are often seen as liberating to their users. Hearing aids and cochlear implants are often seen as burdens to their users. Nobody has to punish their child or nag their spouse into using their wheelchair, but for hearing devices, it’s common, it’s expected, it’s something you’re warned about beforehand. Please be understanding of the Deaf, we may not always be the nicest or easiest to understand, but nobody understands deafness better than us.
LustyArgonianMana@lemmy.world 1 month ago
Actually in the wheelchair community, there can indeed be pressure to use the least assistive wheelchair possible. Chairs aren’t 100% seen as liberating and there’s a lot of nuance into why people pick certain chairs beyond finances. My aunt repeatedly fell out of her chair because she insisted on one made for a lower back injury than she has. She kept it for status, because she looks more able without the sides.
I guess ‘differently abled,’ just comes across as ableism to me. Not using visible signs of a disability, like a chair or hearing aids, can be internalized ableism. Some of the worst verbalized ableism I’ve heard has come from disabled communities. It’s a very complicated topic, not least because disability is used to harm disabled people and take away their agency. And for many, there is a lot of grief with using assisitive devices.
That being said, I don’t think people should be forced to change or to use devices they dislike. My aunt still uses her chair, it’s not like we’re going to drag her into another one or whatever. I just wanted to point out the internalized ableism that could be contributing to this attitude and word change.
It wasn’t so long ago that the Civil rights Era stopped disabled people from being chained in attics and lobotomized and hid away. It’s entirely reasonable to fear that association.