I dontsted my DNA to a research project. I have Crohn’s disease and type 1 diabetes. I’m likely autoimmune prone.
I get updates about what it’s used for. Usually trying to identify causes for autoimmune diseases. It feels good to help out the people fighting disease.
But that’s sort of the point. You donated it knowing it was going to research. People using 23andme did not. And they will not be getting updates on the research either.
No, the project there referring to was run by 23andme. My whole family participated (and continue to participate) in the same research because so many of us have Crohn’s disease.
lmaydev@lemmy.world 10 months ago
I dontsted my DNA to a research project. I have Crohn’s disease and type 1 diabetes. I’m likely autoimmune prone.
I get updates about what it’s used for. Usually trying to identify causes for autoimmune diseases. It feels good to help out the people fighting disease.
FlyingSquid@lemmy.world 10 months ago
But that’s sort of the point. You donated it knowing it was going to research. People using 23andme did not. And they will not be getting updates on the research either.
qqq@lemmy.world 10 months ago
They were very clear it was for research in my memory. That was the reason I did it.
Chetzemoka@startrek.website 10 months ago
No, the project there referring to was run by 23andme. My whole family participated (and continue to participate) in the same research because so many of us have Crohn’s disease.
FlyingSquid@lemmy.world 10 months ago
Okay, but again, that is willing participation where you get informed of the results. Which is not what is being discussed here.