Comment on Disabled people are trying to tell us how benefits system is killing them. It’s time we listened.

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VaultBoyNewVegas@lemmy.world ⁨1⁩ ⁨year⁩ ago

I was diagnosed with ibd a couple years ago and I am regularly anemic and I need to get iron infusions as well as having regular tests and appointments. I asked about ibd and pip as it is now and the dude wouldn’t understand that I’ve days where I’m completely incapable of doing anything because I’m bloated, stuck at the toilet as well as fatigued. The specialist nurse who is in charge of my care has told me that with ibd there are periods where you would be ok but it’s an unpredictable condition as I might have severe problems for a week and be fine for 2 months

According to the welfare people, I’m clearly fine because my condition is unpredictable.

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