YSK that the United Kingdom created the Biobank, the largest health study in the world. 500,000 volunteers have their blood, genetic and health data shared.

Comments

• golli@sopuli.xyz ⁨2⁩ ⁨days⁩ ago

  I am quite torn on this one. Of course this can be a tremendous resource, but at the same time when volunteering genetic and medical data you are not just giving away your own, but also information about others, who didn’t get to make that decision.

  source

  • jimmy90@lemmy.world ⁨1⁩ ⁨day⁩ ago

    www.ukbiobank.ac.uk/…/protecting-the-data/

    source
  • Cevilia@lemmy.blahaj.zone ⁨1⁩ ⁨day⁩ ago

    How?

    source

    • golli@sopuli.xyz ⁨1⁩ ⁨day⁩ ago

      As others have already answered, you share DNA with relatives. Anonymisation is certainly good, but I wonder how well it works with something so inherently personal.

      Some areas are conserved quite well, so you can find inferre the degree of kinship quite well. Another aspect is that imo one of the dystopian uses of DNA is for health insurance. And for that you wouldn’t necessarily need to know whether someone has a certain gene or not. It would probably be good enough to work with probabilities, if you know someone else in the family has a certain gene.

      But I am probably pessimistic here, because of course there is tremendous value for research here.

      source

      • -> View More Comments
    • qaz@lemmy.world ⁨1⁩ ⁨day⁩ ago

      You also share the partial genetic information of your relatives

      source

      • -> View More Comments
• SpacePanda@mander.xyz ⁨2⁩ ⁨days⁩ ago

  And in the USA this could raise your insurance

  source