Sorry to play armchair doctor, but has she tried budesonide? I ask because a friend of mine has/had very similar symptoms. He was diagnosed with microscopic colitis but it was actually mast cell related. Doctors are still trying to figure out what mast cell disorder it is, but the leading theory is the other medication was causing his mast cells to degranulate, whereas budesonide inhibits degranulation.
Comment on A Woman Was Arrested For A DUI. Turns Out She Was Having A Stroke
thantik@lemmy.world 6 months agoOpposite problem. She’s got microscopic colitis and can’t stop moving bowels.
SoleInvictus@lemmy.world 6 months ago
thantik@lemmy.world 6 months ago
That’s one of the ones we eliminated that we thought may have been producing the reaction. We’re unwilling to even begin trying to mess with that again, as she would be a VERY big handful during these events.
indomara@lemmy.world 6 months ago
Going to chime in where I wasn’t asked here just to give you a new avenue - look up pharmacogenetic testing. It’s expensive, but one blood test and they can tell you which medications you rapidly metabolize or don’t metabolize at all - I found out a common OTC acid reflux med can make me really ill. I also rapidly metabolize certain anti depressants, which explained why I was completely out of it on 1/4 tablet. It also let me know which ones are safe. Your wife might be a rapid metabolizer of some of these meds and not even know it!
thantik@lemmy.world 6 months ago
I appreciate it more than you could understand; we’ll look into it. Doctors have all told her “it is what it is, nothing we can do about it”. So finding someone else who knows a little bit about this is a huge relief.
indomara@lemmy.world 6 months ago
I don’t know exactly what your wife is sensitive to, but I had a similar reaction to drugs that shouldn’t have done a thing to me. No one in my life has ever told me about pharmacogenetic testing, the ONLY reason I ever heard about it is because my new GP used to be a pharmacist.
I tell everyone about it now. You know all those friends who spent a year or two trialing different mental health meds to find one that worked? What if they could just get this test and immediately knock off any that they won’t react to and be forewarned about any they might be sensitive to? It’s amazing!