Comment on Why don't they have simpler names for brain disorders, where perhaps even the person suffering the disorder might be able to remember the term themself?

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Squirrelsdrivemenuts@lemmy.world ⁨13⁩ ⁨hours⁩ ago

But who does the patient need to communicate it to other than health professionals? Other people should be satisfied with a phrase like “dementia that causes me to behave different and/or have difficulty speaking” otherwise they are just going to have to look up the disease anyway.

FTD is a rare disease (meaning less than 65/100000 people get it in their lifetime) and there are thousands of rare diseases. Who do you propose should come up with simple names for all of these, teach these to all medical professionals and make sure all info online gets both the descriptive and simple name attached?? There are enough issues with terminology in the medical world as is, trust me.

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